Hi everyone
Im just wondering if anyone who browses this site is ever going to post anything , i check her often seeking other nova scotians to talk with about caregiveing and all it means to each of us as caregivers and i have to admit that it is depressing to see that most of the final posts i did myself over a month ago .
Getting a wee bit dissapointed in talking to just me i guess
stay safe all
Goldie
Hi Goldie ...... a Nova Scotian by proxy , particularly when the back brothers make their reappearance ..... fin & hump that is.
In general , there has been a fall off of posts across many countries Carers Forums ..... classic case of once venom has been spent , little else is left beyond a soap opera type dialogue.
In the UK , the carer masses seem to be splintering , with the supporting charities left to get on with what they do ..... provide a " soup kitchen " type of service to those carers able to participate \ attend. The increasing legions of 24 \ 7 carers have no " home " to go to on the Net , nor any hope of things changing for the better ( respite care cutbacks continuing leaving many carers to join the ranks of the infamous 24 \ 7 club ).
Annual indexed linked rises in the level of benefits ( including Carers Pittance ) lag behind the true rate of inflation for those at the bottom of the heap ..... now categorised as the Underclass ( mainly the elderly , the less abled , and their carers ..... some 11 million + in the UK ). Consequently , the level of debt incurred by many just to keep a roof over their head , and eat a meal at least once a day , is increasing.
Not a pretty picture , and nothing on the horizon to give any hope.
Until someone , somewhere , starts making waves to bring the plight of carers worldwide to the attention of the masses , the dreaded apathy will rule.
I agree for caregivers the debt and work load is amazeing , currently my debt load has gone from mild to impossiable in a short term of 7 months i have been doing this , still no respite in site though they called a month ago and said they were working on it . At the rate dad is declineing though i figure he will be in the hospital before i hear any more about that and then it will be of no use to me what so ever . Untill then i just deal with each day as it comes and try not to think ahead much ,
Goldie
Hi Goldie. I hope you havent given up on the site. I also see there is lots of activity but nobody posting. I find the site a little hard to navigate. Maybe others do too. I am a caregver to my wife who has suffered a brain injury 3 yrs ago and now has no short term memory. only 50 years old. A lot of a similarities to dementia, She requires 24/7 care really for direction. With her memory loss she doesnt know where she is or how she got here although, thankfully she does remember peoples names and faces. needs prompting but she is mobile but, somewhat restricted, and tired all the time.
The NS government is really frustrating to work with most of the time. They are good at the initial time of problem, but follow up care and support, ongoing therapy , or treatment is really lacking . ( my opinion). Good at saving lives and getting people back on their feet initiallly, but it falls down from there. No $$. but the problem is just not in NS although I hear it is worse in Canada the further east you go. I hope you are finding your way and getting some help. All the best !
..
I can only speak for myself in regards to the lack of posting....I don't always have the time. I was always a regular contributor but since this past spring I've been renovating a cottage, getting my house ready to sell, renovating my boyfriends house and then moving. It's hard trying to work full time and then divide what free time I have between my 85 y/o mother, my b/f and myself. I put myself last on that list because I am always the one who gets what time is left over. I don't always feel like logging onto a site to see what others have to say. I don't expect the government to help me financially because my b/f and I make to much money in their eyes but it would be nice if they provided some respite care....then again, I don't know if my mother would want it or if my guilt level would allow me to walk away and leave her care to someone I don't know.
That's my rant for the day.
Dianne
Hi Dianne.
I hear you ,on finding time to go online. Perhaps( hopefully) many people are getting support from other sources if not comfortable on line. My point on the lack of $$ available from the government isnt just in relation to respite and long term care. Its about the lack of any funded programs for disabled ( specifically brain injured) whether they are in their own homes or not, and the lack of help guiding caregivers through a complex system, when they dont have a lot of time or energy to seek it out. Seems there are many fine programs out there through associations , clubs or churches. Its a matter of finding them and hoping the well meaning people involved can receive trainng and support to avoid burnout.
...Sometimes I wonder if its guilt or truly caring for someone that guides us with these tough decisions.
Hi Diane,
I just wanted to say hello.
Not having enough time is something all carers can relate to.I think most of the time we go on
automatic pilot.
Hope all your hard work on house pays off.
Respite care brings all sort of feelings Diane but each individual makes their own mind up.I never personally accessed this service but I know many who have and they have benefitted from it so much.Recharged their baqtteries and been ready to care again.
You will know when/if the time is right.
If you get time Diane,click on this next link.I have taken it from the site in UK that the British members here belong to.
http://www.carersuk.org/Forums/archive/C...663537.htm
Look through and see just how many of us share the same feelings.
Hi Ziggy,
Do you have any organisations over there that can provide you with all information needed when caring?
How does your country actually assist you all in your caring role?
Was good to see you posting again.
Rosemary
Hi Goldie,
Hopefully you are still checking and haven't given up on this site. Like Dianne - (great to see you back here Dianne btw) this summer has been a hectic one in my world.
But cooler temperatures have brought me back indoors and I look forward to sharing this journey we are on, with you and the other caregivers on the site.
So good to see you here Cin. I was wondering what happened to you since we last talked. I hope the summer has been good to you.
Dianne
Good to see you too Dianne. I was wondering how you made out with the move.
As for summer being good - don't know about that, I'm still waiting for summer to happen - we had monsoon season here lol. The past couple of months were a bit hectic albeit productive. The garden seemed to like the rain. Dad seems to be enjoying the result.
How's your mom taking to the new living arrangements ?
Is it any easier for you ?